Eva Batista is one of the youngest people to suffer from SMA1. We don’t want to bore you with the scientific definition, but a quick google search will tell you that ‘SMA1 is a severe infantile form of Spinal Muscular Atrophy characterized by severe and progressive muscle weakness resulting from the degeneration and loss of the lower motor neurons in the spinal cord and the brain stem nuclei.’
In human language, that means she may never get to walk to the bus, never sing at the talent show, never dance with her father at graduation, never have the chance to experience her first heart break or make her mother nervous as she learns to drive. A textbook definition could never contain the gravity of this. Words cannot explain the gravity of this. She may never get to experience so many things, but no matter what, she will experience the love of those close to her. We just hope that is enough.
The family has had an immense amount of help from our loving communities, with 2 million dollars raised since her diagnosis in October at less than two months old. This is a huge feat, but they still have a third of the way to go… because close just isn’t enough when it comes to life or death.
Songs for Eva is one of the biggest pushes yet, in hopes to reach the final 1 million dollars. Musicians from Canada, Portugal and the USA are coming together to perform an online concert, with the help of MDC Media Group. You can stream it here on May 9 starting at 2 pm EDT or watch it on Camões TV.
“Please enjoy the concert. I one day hope to sing and dance too.”